Massage Monday

For the past two years, my sweet friend Gina has put her faith into action providing weekly in-home massages. Sometimes twice a week, depending on what destruction I’ve done to my body. I am a little hesitant to call them a “massage” because that implies dim lighting, no talking, aromatherapy and the sound of ocean … More Massage Monday

Fancy Footwork

My new foot control has given me my mobility back! Showing off my fancy footwork. View video on Facebook:


Look Mom! No Hands! My thumb continues to struggle controlling my wheel chair. In fact, my thumb, more often than not, has been struggling to move at all. Trying to push the control feels like trying to push fifty pounds of weight with my weak and scrawny thumb…just not happening! I knew this would be … More Badass

Electrical Scare

We lost power a few weeks ago, a transformer across the street failed. My programmed reaction has always been to flick the light switch, check the dinner in the oven, or open the refrigerator and garage door — but that was before ALS. This time, the lights and fridge were not on my mind. I … More Electrical Scare

Tough Mom Week

It’s been a tough mom week here in the Dewey house. I printed out Ian’s summer reading list but neglected to see there were assignments to go with each book…due on the first day of school! On his second day, I didn’t notice he wasn’t wearing a belt and my rule following son was nervous … More Tough Mom Week