Yes, I do have ALS, also known as Lou Gehrig’s Disease……there ya go, I said it *gulp*
I was diagnosed June 5, 2014 after almost 9 months of progressive symptoms and testing—followed by a second (and even 3rd opinion). I will be blogging my journey and raising awareness of ALS and how it can strike anyone or any age. #ALSIceBucketChallenge has hopefully given us a head start in raising awareness of WHAT ALS is and WHY there is no cure leaving ALL people diagnosed with ALS a prognosis of 100% fatal in 2-5 years average (annnnnd, I have been diagnosed as “faster than average” progression —double whammy) .
God has blessed me with a beyond words amazing husband , three perfect kiddos, a sister stronger than you could ever EVER imagine, my Robinson/Dewey family who support me every step of the way and friends, new and old, from all parts of my life that have come to bare this overwhelmingly nasty diagnosis with us, lifting us in every way! For this, I am blessed and I continue to be prayerful.
For all of you inclined to take the #alsIceBucketChallenge to raise awareness and funding, please consider ALS-TDI researched based (ALS.NET) or TeamGleason.org ; two organizations that will use all funds wisely and the best chance of getting a medication out of research development to save my life.
So, as we carry on our ALS Ice Bucket Challenges, remember I AM A FACE of ALS and so is my 5, 7, 9 year old children, my husband, my family and my friends! I’ll consider a like as a sign of support for #TeamDewey xoxo